Last year I had the pleasure to meet KT King here on my blog and we discussed her Little Eden books, writing and health. KT King has suffered for over 27 years with the chronic and invisible disability called Myalgic Encephalomyelitis also called Chronic Fatigue Syndrome. She is trying to help raise awareness for this terrible, debilitating and life destroying disease. The main heroine of Little Eden, Sophie Lawrence, also suffers with CFS but she is still a heroine none the less.
I am pleased to pass this post over to her to discuss a subject close to her, ME/CSF Awareness Week.
Raising awareness for National ME Awareness Week 2020 by KT King
Imagine if the self-isolation and social distancing you have been experiencing these last few weeks was going to continue for the rest of your life?
That’s right, for the rest of your life – without let up, without reprieve, without end.
On top of being stuck inside, unable to shop, see your friends, go on holidays, go to the pub, a café or the supermarket, you feel as if you have the flu 24/7. Your body won’t function. Everything aches. You find even the smallest tasks, like taking a shower, cooking a meal or reading a chapter in a book take all your energy.
Millions suffer from this misunderstood illness worldwide but there is little research and no known cause or cure. The World Health Organisation has registered it as an epidemic but governments are still not helping those affected.
It can happen to anyone at any age.
Living in isolation, often bed and housebound, without an income or state support, without medical help or carers, sufferers of ME are forgotten by society and rely on family charity to survive.
We were never supported on TV, by our neighbours or communities, the NHS or carers, we were not given mental health support or had our wages paid at 80% when we had to give up work or lost our businesses. Most of us live in poverty, forgotten and blaming ourselves because no one believes us.
When you return to normal, we will still be in in lockdown without hope.
More about me
Many may wonder how I can write novels if I have ME/CFS. I am able to write when I don’t need to do anything else. The fluctuation of the illness baffles everyone as does the resolve of those with it to battle on trying to make a living. I lost my home, my income and my independence in 2012 coming back to live with my elderly parents on whom I now rely for physical daily help and financial support. By age 40 I had lost the battle with ME.
Writing too much gives me migraines so I can only write a few days a week for about an hour at a time on what is called ‘a good day’. I write through chronic pain and fatigue but it keeps me alive and it keeps me sane.
Mental and emotional health deteriorate for all of us because we can rarely socialise or see friends. We feel we have no purpose or usefulness and many of us are in terrible pain 24/7 with Fibromyalgia which often accompanies ME.
We can either give up or we can try to do something even if it’s just a little thing on ‘a good day’.
Becoming a published writer is a lifelong dream come true and escaping into Little Eden helps keep the suicidal thoughts at bay. I hope it’ll be a beautiful escape place for you too. One of the main things readers say is that they would love to live in Little Eden which makes it all seem worthwhile!
I’m an indie author, using my savings from before 2012 to publish. I can’t meet deadlines of publishers or do the usual sales promotions.
I can spend months, even years unable to get out of bed so I need all the help I can get spreading the word about my books, especially from kind book bloggers like Katie.
I find crafting is good for mental and emotional health so when I can I make handmade jewellery to give to friends and to sell in my Etsy shop where all the gifts inspired by Little Eden. I rarely have the energy to bake but now and again I manage to make a cake or some cookies! Some of my recipes have made their way into the novels.
Come and browse in my little Etsy shop http://bit.ly/KTKingShop
You can follow the global campaign called MillionsMissing and/or KTKing on Twitter.
For more information please visit the ME Association website https://www.meassociation.org.uk/about-what-is-mecfs/
About Little Eden Books
Little Eden Books thrillingly combine the supernatural and spirituality in a magical mystery set in the cosy, idyllic and ancient sanctuary town of Little Eden. The hero, Robert Bartlett-Hart, goes on a journey of self-discovery and enlightenment with the help of his friends and plenty of tea and cake! The novels are a comical yet genuine look at the spirit world based on the work of psychic, healer and ascension coach, KT King.
To purchase Book One and Two as Kindle or paperback just click on my linktree https://linktr.ee/ktkingbooks
Thank you for visiting my blog KT and good luck in spreading awareness of ME and CSF.
Keep an eye out for future posts on KT’s books here this week.
Happy reading and stay safe!